Neurology Update

Sienna's new neurologist has ordered a follow-up MRI to see if there has been any progression in damage. She also took the time I desperately wanted to go over her impression of Sienna's original MRI images. I was extremely grateful for this and happy to hear that she also had doubts about the original "diagnosis". Another test she was able to order was the full genome sequencing. I think this is a great advancement in technology and look forward to seeing the results!

Saturday CP hack

When I come across neat ways parents save money by making their own specially adapted things or great deals, I will try to post them on Saturdays! I think it is wonderful to come together to make our kiddos lives easier on a budget. Anything marketed for special needs is outrageously priced...



The CP hack of the week is, swings! Here are two great ideas that I found on Instagram and Pinterest.


This one I think would be fairly easy to do!

http://www.pinterest.com/pin/207587864050406657/

 

 



The second one is with a frame which can be built. These frames for special needs swings cost a LOT of money! I would find out how to build my own for the cost of wood and bolts.

 

 

                                            

 

There are so many cool DIY options on Pinterest. I am an addict.....haha

 



Blessed

Sienna's standing walker was finally approved! She absolutely loves being mobile at a more normal height and she gets a very good stretch. Now we are just waiting to get her some better foot positioning AFO's or shoes. The model for those of you who might need to know what to ask for if you need one for your child: Rifton Dynamic Stander K150