So we have been home for a few weeks now and Sienna is continuing to show progress. Physical therapy is basically something I have had to continue here at home despite the extremely stressful situation we came home to. Her muscles which showed some improvement, have become a bit tight again and I think this is normal for a few reasons. One, we started with 60 treatments. Many children with her condition show greatest improvements that remain after 80-120 treatments. Every child varies. Two, getting her back into a routine and consistent therapy to continue her improvements has been slow going. An appointment is being scheduled to check for head growth in a few weeks to give the HBOT therapy some more time to get going, as most significant improvements take some time to manifest, post therapy. She has already had some growth! At this appointment, we also plan to get a referral for continued hippotherapy as this was definitely helping her.
Sienna at hippotherapy <3
As much help and love and support as we got for this initial round of
HBOT, we fell short upon my return home and are in some trouble
financially. I think I have been truly underestimating the financial
impact her disability will continue to have. Books on the subject state
that non insurance covered medical expenses can soar into the millions
throughout the child's lifetime.
The reality is that insurance BARELY covers their own recommended
therapies and appointments and anyone who truly seeks to give their
child the absolute best quality of life through whatever means they deem
necessary, whether it be proven alternative therapies, or nutrition, is
straddled with a huge financial burden.
Please continue to share her story. Thank you all!
