Day 5

I have learned a lot here, in just this short week. One thing I learned and want to share is that no matter what anyone says to you about your child or loved one...there is always more. There is always another way. More options than just drugs, surgery, stasis, or death. Believe it. Ask questions, do research, and NEVER GIVE UP ON YOUR KIDS! YOU are their only advocates as parents and YOU can push past a person who tells you there is no hope and prove them wrong. Ok now that that is off my chest...we are doing well and Susan is just an amazing woman. I am so blessed to have found her and this center for Sienna. She is getting into everything and being quite charming as usual. :-) More updates to come! Here is a picture of her asleep in the chamber with me.