Quick Update! Good news confirmed

Sienna had her final test done and alllll labs and tests have come back negative for any genetic or metabolic disorders. This means her condition is most likely not degenerative and she will only continue to progress and get better. This is wonderful news to have confirmed and a blessing. Now the goal is to continue to retrain and regrow her brain to mitigate the damage and improve her life dramatically. I have good tools in my arsenal and big plans for her. <3

We have a long road. I have started to reach out more to other parents as much as I can. Being a parent to a child with a disability or condition can put you in an isolated bubble if you let it.
Unless you have a child like this, you just don't know what to say to me..or you are completely uninterested...and I understand. I am thankful for my wonderful friends. They are there to get my mind off of the serious and allow some peace. And they do try. When I talk about Sienna, I have to remember not to go into much detail. All the medical terms which have become so familiar to me are foreign to them. In spite of it all..I find blessings in every day. In every smile and every hug and every kiss she gives me.