Now a few years later, I have continued to get a lot of continued progress through other means due to the high cost of HBOT although I would love to someday get more of this treatment for her.
So for now I will talk about her day-to-day life, share tips and "hacks" I have come across and share her progress.
I will travel back in time a bit today since it has been so long (busy, busy!)
In August of 2013, Sienna started a pre-school program where she made tons of friends and I just loved and adored her teachers. It was difficult for me to leave her in someone else's care but she was in good hands.
During the school year they used a Rifton Dynamic stander for her. This is what it looks like.
The purpose is to have them in a full standing position which stretches them and the wheelchair wheels give them mobility!
Here is Sienna when she was younger in her walker.
What a proud moment this was! Now she will walk back and forth however she needs to be turned around when she runs into the wall, couch etc. but practice is practice!!
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